Category Archives: ableism

Missing Bodies: Where Are Disabled Women in the Body Positivity Movement?

Line drawing of Anna with devil horns. A speech bubble proclaims RAAAWR

This essay was originally posted on Disability Intersections in 2014. Since then, there has been a lot of (rightful) criticism of body positivity–read Evette Dionne’s “The Fragility of Body Positivity” and Amanda Mull’s “Body Positivity is a Scam” for more. 

Love your body! Stop hating your body; start a revolution! These are just a few of the popular third wave slogans that are fairly well-entrenched as directives, or at least as aspirations, within feminist activism both online and off. There’s Love Your Body Day, sponsored annually by the National Organization for Women (NOW), Love Your Body weeks on various college campuses around North America, and thousands, if not millions, of web pages, graphics, and digital art pieces online that celebrate this theme and encourage women to do so every day. Many liberal feminists have proclaimed that body image –and a matching emphasis on loving your body–is “the” issue for the third wave, as this widely-anthologized essay by Amelia (Amy) Richards explores.

At a basic level, LYB discourse can be a positive thing, and it’s often a good stepping-stone for women who are new to feminist ideas. But it’s this very basic quality that can limit–and does–which kinds of bodies are acceptable to reclaim, have pride in, and even love. A cursory Google search for “love your body” brings up a plethora of images of white, visibly abled, young, cisgender, straight, and/or acceptably thin women encouraging other women to love their own bodies. From this cursory Google search,  I found one image–-the NOW Foundation’s LYB 2009 contest-winning poster designed by Lisa Champ-–that shows a variation on the woman clip-art symbol with a (visible) disability. This single image (now offline!) was more than I was expecting to find, but even with this limited representation, there are still problems in how LYB discourse is built for and around abledness–not least of which is its leaving out of disabled bodies. The complex relationships that many women with disabilities of all kinds have with their bodies are left out as well.

Many of us who have disabilities, chronic illness/pain, or mental health issues actively struggle to love our bodies for a whole host of reasons. Disabled bodies, unhealthy bodies, sick bodies; like other bodies that deviate from the “norm” (that is: white/abled/cis/acceptably thin) that liberal feminism so often reinforces instead of dismantling, our bodies may be accepted by feminism, and other feminists, at a surface level, but when it gets down to the nitty-gritty of what loving non-normative bodies actually entails…well, feminism doesn’t know how to deal with that.

To use a personal example: I look like your “average” youngish white feminist. While I’m not thin, I’ve never had a stranger comment on the overall size of my body, my eating habits in public, or my clothing in the way that people so often comment on the bodies of fat women.  (When I do receive unsolicited advice, curiosity, or commentary from strangers, it is usually about one of three things: my pronounced limp, my cane, or the size of my breasts, although those are stories for another post.)

With the exception of my use of a cane, I have a body that is able to fit in reasonably well when I’m in public. Take away my cane, and I might resemble what an average person might expect a “young feminist” to look like.  Here, too, is where I  depart from all of the well-meaning messages in love your body campaigns. My average appearance and weight are the easiest things to accept about my body, but my disabilities? Less so.

My body itself is in constant pain, and is usually fatigued, thanks to fibromyalgia. I don’t like being in pain all the time; in fact, part of my medical treatment is dedicated to reducing this pain via the use of certain medications. On the other hand, being in pain has shaped my personality in a variety of ways. Having fibromyalgia is not “empowering” in the usual ways that LYB discourse demands of bodily acceptance for women.

Oftentimes, fibromyalgia is horrible. But having it has also made me a fiercer advocate for equal rights for people with all types of disabilities, access to proper pain management for people with chronic pain (many of whom suffer from pain on a daily basis), and related causes. I’ve also been experiencing mysterious and severe allergic reactions for over a decade; these do not happen every day, but when they do, they are usually debilitating.

What qualities are we supposed to love about our bodies, anyway? I am grateful that after an allergic reaction, my face reverts to its “normal,” non-puffy look after 12-24 hours, mostly because the swelling around my eyes often does not allow me to see very clearly (and is also uncomfortably itchy when it happens). I appreciate the fact that during a reaction, my body tries to get rid of whatever’s caused that reaction–but this doesn’t mean that I have to love sitting on the toilet for hours while my intestines empty, and as I become increasingly dehydrated.

LYB discourse instructs us to to love surface things about our bodies: skin, limbs, stomachs, thighs, hair, freckles. . .the list goes on. Or what “our” bodies can do: run, jump, hike, exercise, dance, appear strong; again, it’s a long list. Many bodies can do all of these things and more. But what happens to the bodies that cannot do these things?

Despite having to work around the fibromyalgia to do so, I am able to exercise, but if I decide to go on a two-hour hike on a whim in addition to my carefully planned exercise routine of daily yoga and walking my dog, that addition is going to land me in bed for a few days, and I’ll be in too much pain to move during that time. The call to love your body and celebrate your body, in those instances,  rings hollow to me. I can’t even get out of bed, and you want me to sing kumbayah in celebration of my body? Some days, I’m in terrible pain even though I didn’t do anything to exacerbate my existing pain levels. There are a lot of things that my body cannot do because it’s in near-constant pain, but I’ll be damned if feminism even comes close to acknowledging that, because it never does.

Loving your body at such a surface level is all well and good when you can run and jump and not be bedridden for days afterward, but try explaining what chronic pain feels like, day in and day out, to a healthy love your body-supporting feminist and see how fast she screws up her face, as if to say Why are you telling me this? Feminism has traditionally been terrible at validating women who have complicated relationships with their own bodies, and LYB discourse is merely a pretty pink symptom of feminism’s–and feminists’–inability to accept, or even barely tolerate, any experience of the body that can’t be spun into New Age-type rhetoric having to do with loving oneself against societal odds, or triumphing over the odds. Gender and disability oppression combine into a toxic goop here, and the resulting mix can start to resemble the second-wave anthem “I Am Woman” combined with Supercrip.

During allergic reactions, I hate my guts that keep me confined to bed or to the bathroom, my ballooning face that begins to horribly resemble the moon in A Trip to the Moon, my lungs that feel like they’ve magically shrunken to the size of quarters for no apparent reason. Very often I hate my fibromyalgia-ed muscle fasciae because they make me physically hurt. I hate the sensation of fatigue that makes me feel like I have a tremendously heavy coat on, in addition to the pain. The thing that many feminists do not understand is that these feelings aren’t caused by the media, by fashion magazines, by impossibly thin models and actresses, by advertising-–no, not even by Big Pharma!

LYB grossly oversimplifies the problem of women’s self-hatred, reducing it to a sort of you just need to try harder pseudo-New Age self-improvement goal that pits “women” as a group-–really middle-class, abled, youngish white women–-against oppressive, sexist social and cultural norms, advertising, and so fourth. But it does not teach women to be accepting of sick bodies, disabled bodies, bodies that don’t work perfectly; much of it is merely another air-thin platitude to which to aspire in order to attain self-acceptance. LYB discourse has even been corporatized; look no further than recent Special K cereal ads so bravely proclaiming “NO FAT TALK,” and those insipid Dove soap campaigns that are supposedly so “body-positive” for proof. Such a corporate vision of “positive” body image only offers body acceptance and self-love as goals for a very specific type of body, as scholar Sarah Heiss convincingly argues in this 2011 article from Disability Studies Quarterly.

It’s not so outlandish to ask whose bodies are positioned as worthy of love, of self-acceptance, of peace in LYB discourse. If you already look like the young/white/cis/abled/average-sized woman for whom these messages are designed to appeal,  body acceptance is probably easier for you than it might be for someone who doesn’t fit into one or more of those categories. I am not trying to dismiss the body image struggles of women who do fit into those categories, often through no fault of their own–it’s just that, like a lot of things in mainstream liberal feminism, LYB messages are made to appear inclusive without actually doing that work in any substantial way.

And when this appearance of inclusivity makes disabled, sick, and invisibly ill bodies not appear outright, well, after a while that’s how you end up with healthy, nondisabled feminists who just don’t understand why disability rights are a feminist issue, or who don’t get why women with pain, fatigue or other chronic health issues can’t just love their bodies instead of letting physical or mental problems and/or what the media says about disabled bodies (and the bodies of disabled women) affect them so much. Or they ask how disability pride could possibly exist since disability always creates “suffering,” as Sierra at RH Reality Check does in this article–-because shouldn’t eliminating disability be a goal for a more feminist and pro-choice world? (You can probably guess my answer to that question.)

In their insistence on uncritically parroting and supporting LYB discourse as it currently exists, some feminists inadvertently reinforce the idea that certain bodies are easier to love–and, conveniently, many of them already fit into what the mainstream designates as worthy of acceptance and love. Those with complicated bodies, ill bodies, disabled bodies–and the attendant complex relationships with their own bodies–are often not so lucky.

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What’s Up with the Internet’s Fascination With Disabled Animals?

Image via https://www.flickr.com/photos/handicappedpets/5731391896/in/photolist-9JsT8E-4Pfkjy-JXMo36-LiBSGu-7UL6ce-bASnee-5h7TGt-aEF82d-burs8a-yRZk9G-JV1kxj-7YMEFv-7FhBGR-SbSS6B-SbSQDZ-8cbMo8-jpdxWU-anmiqK-7YQTGh-bW9SZ3-9f4YKL-9f1Qzx-ngxmo-5h1ho6-J2Snyn-KZc2pj-QkAnX7-cW5CNd-a1Fkc2-3dYFt6-9Jq4MM-as7qew-as4MUn-51jCSW-g3BUZQ-7YQTJu-S8hqtm-k1H7g-613TzU-51frUX-bE824i-6Ge8VJ-9U54UU-bE7Np2-brcR9m-bE7jjF-bE7S6i-bE7jFx-bE7TLV-bE7VVB; used with Creative Commons (CC) license.If there’s one thing that internet denizens can agree on, it’s that animals–especially domestic pets–are great. (There’s even a Wikipedia article on the internet’s love of cats.) And why not–pets are so cute!

From the (now inactive) Cute Overload blog to the /Aww subreddit, cute animals have been in high demand online for a while. But there’s a not-so-adorable side to the internet’s thirst for cute: the fetishization of animals, particularly pets, with disabilities.

The breathless coverage of apparently “inspirational” animals with disabilities is everywhere: A pig named Chris P. Bacon (ha ha, because we usually eat pigs, right?!) had a wheelchair made for his back legs! This duck has a new lease on life thanks to a prosthetic foot! Wow, a goldfish with a wheelchair! Don’t discount the thousands of results that a simple Google Image search for “disabled animals,” brings up, either—there are a lot of photos, stories, and memes about them.

As with a lot of internet trends, this fetishization is widespread, but difficult to trace to a single source; there are Buzzfeed articles, photo sets with varying degrees of context about the photo subjects’ disabilities, television specials, and—of course—lots and lots of “inspirational” coverage of humans who have saved animals with various disabilities (but WHO SAVED WHO?). So why is the internet obsessed with disabled animals? My take is that the various “inspiring” stories about disabled animals provide a way for nondisabled people to talk about and engage with disability in a facile way. If one is constantly gawking and aww-ing over pictures and stories about animals with disabilities, then they don’t have to spend time thinking about actual disabled people, or the ableism against disabled humans that still exists.

Much of the positive coverage of disabled animals takes a cue from inspiration porn, a term that was coined by disabled comedian and activist Stella Young. Disability activist and writer Rachel Cohen-Rottenberg sums up inspiration porn as “consist[ing] of the objectification of disabled bodies for the purpose of inspiring able-bodied people” to, among other things, stop whining, get a better attitude, and use their WILLPOWER to overcome various obstacles. The main message of a great many inspiration porn images, stories, and memes is generally: This person with a disability overcame adversity/got in shape/stopped whining and embraced happiness, so why can’t you, abled person?

Being inspired by other humans to live up to one’s full potential is not bad on its face, but inspiration porn reduces disabled people—and their varied life experiences—to life lessons and just-so stories that abled people can be inspired by and then forget about. Inspiration porn uses disabled people as objects—not subjects—in its quest to motivate (or shame) abled people into getting up and “doing something,” living their dream(s), or accomplishing amazing feats. Simply put, inspiration porn images, articles, and memes use disabled people as inspiring things to be shown off, usually for the benefit of abled people’s personal motivation.

There are other phrases and tropes that tend to be used in inspiration porn material, including “[condition or disability] doesn’t stop this person from achieving their dreams,” “[person] is so happy despite their disability,” and “[person] has such a great attitude about life” and can teach abled people so much about what it means to really live; that last one seems to have sprung from the ridiculous Scott Hamilton quote about the “only” disability being a bad attitude. [An aside: That quote is also a great example of a person with a disability policing the experiences and opinions of other PWDS—Hamilton has had a few much-publicized battles with cancer, but doesn’t seem to have realized that cancer is disabling, no matter what kind of attitude you cultivate.]

Unsurprisingly, these tropes are also present in a lot of disabled animal inspo-porn:

These animals are so INSPIRATIONAL for doing normal animal things, plus a side of “disability is bad”: “These fur balls were dealt crappy hands, but they’re still smiling, purring and wagging their little tails. That’s what I would call totally inspirational!”

[Disabled animal] has so much to teach us nondisabled people about compassion and empathy: “Now, Joe has a new mission: using his experiences to help teach young kids to prevent bullying by using empathy and compassion.”

Another [disabled animal] has so much to teach humans about themselves—and LOVE! “He shows them that with love and kindness anything is possible.”

Hear that, nondisabled humans? Don’t complain or feel sorry for yourselves—be like this cat. “Cats just figure things out…They do not waste time feeling sorry for themselves—they simply get on with the act of living and have a whole lot of fun doing it! In their heads, they are fine and dandy, just as they are!”

This INSPIRATIONAL cat can do things, just like normal cats! “Belle is quite an inspiration. She cannot jump like other cats, but that doesn’t stop her from climbing on anything that she can stick her claws into.

Gawking at these disabled animals—and sharing their “inspiring” stories (usually written by nondisabled humans) across social media—becomes a way for people who may not have significant personal experience with disability to engage with some common tropes about disability. Unfortunately, many of these “positive” tropes about inspiring disabled animals who (unlike humans?) don’t complain about their lot in life are still damaging. It may not be politically correct these days to pity and gawk at people with disabilities, but it is accepted—even encouraged—for nondisabled people to project these feelings about disabilities onto disabled animals. The compassion that commenters, Tweeters, and social media sharers may have for these disabled animals doesn’t seem to extend to people with disabilities; while pigs and goldfish get wheelchairs and their humans are praised for “good deeds” by the internet, many members of the online disability community have had to crowdfund for wheelchairs.

Certainly, on the scale of issues surrounding the comparisons of disabled people to animals, this one lacks the horrifying implications that, for example, Peter Singer’s continued contempt for people with disabilities in the name of animal rights and utilitarian philosophy do. But the continued and unquestioned objectification of “cute” and “helpless” disabled animals highlights how even the most well-meaning nondisabled people can and do project damaging stereotypes and tropes about disability—and the apparently “inspiring” nature of people with disabilities–onto animals. Such projections do both animals and humans with disabilities a disservice. Disabled animals deserve to have full lives—not to just be “inspiring” objects at which to be gawked.

Originally published on Disability Intersections.

13 Fibromyalgia Moments

naturalhabitat

In my natural habitat.

  1. I slept in until 10:30 this morning, but am ready to go to bed right now. It’s just after 9:00 PM. This feels like a failure, somehow.
  1. Wikipedia defines fibromyalgia as “a medical condition characterized by chronic widespread pain and a heightened pain response to pressure. Other symptoms include feeling tired to a degree that normal activities are affected, sleep problems, and troubles with memory. Some people also report restless legs syndromebowel or bladder problemsnumbness and tingling, and sensitivity to noise, lights or temperature.” Fibromyalgia does not sound so bad, defined this way. Any person with the condition, however, will tell you that it is much worse than this definition makes it sound.
  1. Something a lot of people do not understand about chronic pain is that it is constant. I am always in some kind of pain. Some days, my pain level is a 1 or a 2 (those are great days); some days, it’s an 8 or a 9 (usually because of rain, or because I did too much, exercised too much, or overcommitted myself the day before). Most of the time, my pain level is between a 4 and a 6. The rock band Hole titled their 1997 compilation album My Body, the Hand Grenade. My body is a land mine that can detonate internally—touch it the wrong way, and it will explode with symptoms.
  1. Even the number scale doesn’t really cover the symptoms that I deal with on a daily basis: pain (it usually feels like I’m wearing an overcoat of bricks), fatigue that feels like I’ve taken at least 4 Benadryl pills, and very strange symptom trinkets like nausea and dizziness, the skin on my face getting extremely hot, and/or feeling like the soles of my feet have been lit on fire. There are more weird symptoms, but listing them could be an entire piece in itself.
  1. The pain itself can take certain forms other than the aforementioned overcoat of bricks: burning, biting, pin-and-needling, scratching, dull aching, shredding, or, my least favorite, pulling. Pulling pain feels as if my bones and muscles are being pulled toward the ground, like gravity decided to weigh on just me a whole fucking ton.

Most of the time, my muscles are as tight as closed fists; this gives new meaning to the phrase tight body.

  1. When the less-common shredding variety of pain occurs, all I can think is, This would be what pulled pork would feel like if it were able to feel.
  1. When I was first diagnosed with fibromyalgia, in 2007, I thought that the name of my new disorder sounded like the name of a gross fish that swims along the bottom of the ocean and eats dead things. That, or the name of a character from George R.R. Martin’s A Song of Ice and Fire series: Lady Fibromyalgia of House Musculoskeletal. Unfortunately for me, it was, and is, neither.
  1. A close relative asked me during a phone conversation, “When you say you don’t have the energy to get out of bed, what do you mean?” I didn’t know how to make the language of that statement any more plain.

I mean that I do not have the energy to get out of bed, I replied.

  1. There have been times when I have attempted to read—to distract myself from my symptoms—and the words look like they’re starting to march off the page. This is one of my indicators of level 8-plus pain or severe nausea.
  1. I have a lot of guilt about not being able to do certain things, especially if social activities with family or friends are involved. Are they thinking If she would just [______], she could make it to the party/art opening/camping weekend?

My partner is quick to reassure me that family and friends would much rather see me when I am feeling well, and that it’s important for me to take care of myself. Despite my frequent worry about this topic, his reminders help. But the expectations that “nice” women are up for anything, are cheery, social, ever helpful, able to go to parties and events, look pretty at all times, be charming and friendly and talkative and make other people comfortable by not showing that they’re upset, annoyed, in a funk, or (in my case) in pain at all–still haunt me.

  1. I cannot remember what it is like to not be in pain. Even being at a level 1 or a 2—usually thanks to medication—seems strange to me. Being in at a low level of pain always feels like I am in another body, like I’ve borrowed someone else’s body for a little bit.
  1. If I had to choose a superpower, I would want to be able to projectile vomit rotten sauerkraut onto people who say that fibromyalgia does not exist, that there is no “physical evidence” for it, that it’s a women’s disease, so we must be making shit up.

The central idea in this attitude, as with the skepticism surrounding chronic fatigue syndrome, chronic Lyme disease, and more—is that women who have any of these “mysterious” diseases must be exaggerating their symptoms for attention, embellishing descriptions of their daily pain to get drugs, or dumb enough to have been convinced by drug ads on TV or news articles or WebMD that they have these “made up” diseases. There’s a pervasive cultural idea that men’s pain should be taken seriously—if a man is in enough pain to visit a doctor, he must be in real pain. The other side of this coin is that women’s pain should not be taken seriously—a woman in pain who’s concerned enough to visit a doctor for treatment might be just hysterical or anxious.

  1. Every single thing that I do is affected by pain, and I have to live my life accordingly.

To people who do not have chronic pain, this sounds like I have given up. To me, it sounds like common sense.

 

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Blast From the Past: The Secret (and how much I loathe it)

[Introductory note: This was originally published on my old blog on March 10, 2007; because I am nothing if not a complete and total buzzkill, I think it’s worth re-archiving here, particularly since “new age” thought has a pretty strong foothold in Western–and particularly North American–culture. This sort of magical thinking still has a strong grip in many folks’ consciousness, even given the recent economic downturn; maybe I’m just naive, but I find the fact that some people can still be all ~*POSITIVE THINKING*~ and/or YOU GET BACK WHAT YOU PUT OUT even amidst widespread economic chaos and a brutal job market extremely surprising, and pretty sad.

Then again, realistic thinking has never been America’s strong suit, particularly amongst the privileged classes. The following post has been slightly edited for clarity. I have since written quite a bit on “positive thinking” as a means of social control, mostly at FWD: The Negative Side of Positive Thinking; Book Review: Bright-Sided; Just. For more information about precisely how harmful “positive thinking” can be when taken to the extreme, I highly recommend this blog post by Dr. David Gorski at Science-Based Medicine, which covers the Kim Tinkham case in detail (content warning for discussion of cancer).]

I just watched the latest and supposedly “greatest” in the self-help/marketing peoples’ insecurities back to them market, The Secret.

I sort of want that 90 minutes back. Now, before people start jumping on me and calling me negative, skeptical, bitchy, et cetera, let me assure you: I am, indeed, all three of those things. I tried to watch The Secret with an open mind. I really, truly did. But, I have to say, besides some of the stuff about visualization*–which I have thought of as a powerful tool for a while, and, at times, it has absolutely worked for me–I simply was unable to get on The Secret bandwagon.

I don’t know what it was that made me so hostile to the entire thing. Was it the overproduced “dramatic” re-enactments, some of which look very familiar to even a casual viewer of the History Channel? Was it “Dr.” Joe Vitale, Metaphysician,** who contends that ALL of the bad circumstances in your life come to you because of, well, you and your horrible, horrible negative thoughts? Was it Lisa Nichols, who was one of four women interviewed (out of 16-17 people) and one of two people of color interviewed? (She seemed to be the most sincere out of all of the “Teachers” interviewed, which endeared her to me quite a bit.) Was it the many shots of people from Other Lands, smiling and laughing, and getting fawned over by the “Teachers” due to their “natural” ability to Make Do With What They Have? Was it the completely oxymoronic focus on using The Secret to gain material things, money and houses (focused on after the many shots of our friends from other lands)? Was it the bizarre assumption that everyone watching the video wants the same damn things? Eeeek!

Then I reread this fantastic article, which outlines some of the problems with The Secret, and how Oprah, unfortunately, has basically adopted it as her credo and is trying to get her viewers to do the same. If it works for her, great. However, one thing that has bothered me about Oprah’s unquestioning acceptance of The Secret is this: It reinforces the great American trope of pulling oneself up by one’s bootstraps. AKA: If Oprah/some disadvantaged person has become successful, then you can, too! All you have to do is think positive thoughts!

There is, of course, a lot more to it than that. I’m all for thinking good thoughts, but it is the denial of reality and various systems of oppression that make this position worse. Racism, for example, is one thing that is consistently denied as to its very existence. I have news for you, folks: Racism still very much exists. I can certainly create a non-racist America in my own mind (and let me tell you, it is awesome), but to see it in front of me is going to take some major societal changes. And it’s the same with sexism. And homophobia. And ableism, and classism, and all of that other fun stuff. “Creating your own reality” only goes so far–eventually, you will run into a structure that is bigger than you, and oftentimes, these structures are oppressive and hurtful to many people. I’m sorry if that sounds “negative,” but it is true for a lot of us. Not many people can conveniently ignore these structures in order to “think positive.”

Bad things are going to happen. Bad feelings happen. That is part of life. One of the Noble Truths of Buddhism, after all, says that life is full of suffering. Of course it is, even though it is also full of Great Things. To deny this is to deny an actual, authentic life. And I have to say, I feel sorry for anyone who shies away from feeling the full spectrum of emotions because they think that “negative thoughts will attract bad things,” (one of the claims espoused in The Secret). Yes, negative thoughts suck. They make us feel bad. But trying to be aggressively “happy” is not only potentially dangerous, it’s Pollyanna-esque and annoying.

[*Visualization, however, is one tool that I really, really like, mostly because it forces me to use my imagination and is quite fun. It’s nothing new, however; various self-help gurus have been promoting this tool for years. Even if it doesn’t work, it’s still fun, and, unlike some of the professional bullies who harangue you for an hour and a half in The Secret, it (most likely) won’t make you feel bad about yourself.]

**I kid you not; this was listed as his actual professional title during the video. When I grow up, I wanna be a Metaphysician!

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The Inner Critic

[Warning for possibly triggering content regarding mental health, specifically depression.]

I’ve been reading a fair number of how-to creativity books (yeah, I know, creativity is not something you can “learn” from a book) recently in preparation for a long-term project, and one thing I have noticed about some of these books–and a lot of the “advice” floating around out there about creativity–is the notion of the “inner critic.” The inner critic, according to some Professional Creative Types, is the voice that tells you that you are not creative, that you can’t write, or draw, or paint, or accomplish whatever creative project you want to. The inner critic is supposed to stand in for everyone who’s told you that you are a crappy artist, that your creative pursuits aren’t good enough, and all of that fun stuff that apparently wasn’t there when you were a kid. And, in the course of becoming truly creative, you are supposed to silence your inner critic.

This got me thinking, however: What if that critic was there when you were a kid? What if the inner critic is, well, part of you, and you cannot “just silence” that part?

One thing that I really don’t talk about publicly (on the internet or off) is my history of major depression. There are many reasons as to why, and I think that those might best be saved for another post. However, there is something that really bugs me about the “inner critic” model of creativity: it does not take depression, anxiety, or other mental health conditions into account. What if that voice in your head has been there for a while, and is an active part of your mental health issue? It’s not so easy to turn off that voice that tells you that you suck, or that your art or writing is a bunch of crap, or that you will never amount to anything when that voice is there because of a mental health condition.

There’s another assumption in writings about the importance of “turning off” the inner critic, which is that all children have a magical reserve of resilience and that is why they are so creative. These children simply don’t care what anyone else thinks, and the Creative Adult must recapture that sense of adventure by silencing the inner critic! It sounds so easy! But what of the depressed child, or the child with mental health issues? As someone who had depression issues as a kid — and still does — I question the supposedly “universal” applicability of this whole inner critic business, the assumption that it can be turned off like a damn light switch, after which we will all Recover Our Childlike Capacity For Creativity, or something.

I remember having my own Inner Critic as a kid, and it was not fun. Certainly, I did have years where I had that sense of Childlike Creativity and Wonder, but those were also interlaced by a voice in the back of my mind that would tell me awful things. And it never left, after a while. It would hiss: You do not belong. You are weak. Your bum leg is punishment for something, and you sure as hell aren’t going to “make up for it” with your stupid cartoons, give me a break! You think you’re going to be popular because of your cartoons? Because of your writing? Please. You are worthless, and also none of the other kids like you. Your art is just a hobby, nothing more.

Then, once the depression came on the scene, those little hissings became, well, much bigger. They’d been there when I was a kid, no doubt, but with major depression, they stuck in my brain like a particularly awful tape loop that just couldn’t be turned off. Things with my depression are much better now — as they have been for a few years — but I am always, always on the alert in case it comes back full-force. My depression not totally gone (nor do I expect it to be), but I manage it with care. And the “inner critic” that artsy self-help types slam? She’s still there, and I think she will be there permanently. The trick, for me, is learning to live with her instead of assuming that silencing her is an easy step.

[Originally published at FWD.]

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Kids these days! The “Generation Y” panic, privilege, and erasure

Recently, I read this bizarre article, penned by Judith Warner, in the New York Times–one in a stream of many that detail how excessively awful the current generation of young people (read: young workers) is at putting its collective nose to the grindstone, sucking it up, and generally not acting like a bunch of brats, or something.

Many of us have heard about, or come into contact with, some of these bright young things. They are heralded — or, more commonly, blasted — as naive, entitled, too optimistic, and over-confident. The note of panic begins fairly quickly: They don’t know how to dress professionally! They expect to march into the workplace of their choice and immediately start making a six figure-salary! They think they are perfect! They want praise all of the time! (Does no one who writes this stuff stop to consider that many human beings want praise when they complete a task to the best of their abilities?) They have tattoos, dyed hair, and iPods! EVERYBODY PANIC, because the American workplace is apparently going to be dragged down by Generation Y’s entitlement, narcissism and laziness! This narrative, however, seems to apply mostly to a very specific subset of the population (and even the picture that accompanies the NYT article reinforces this): young, able-bodied, middle to upper-middle class, college-educated white people.

This erases, or conveniently ignores, a hell of a lot of folks who are not young, abled, middle/upper-middle class, and white. It erases young workers who may not have had as many educational opportunities, or who had to take more than the expected four years to finish their degree, or who did not finish school, or go to college at all. It erases people whose parents or family members may not have been quite so “involved” in their education, or in their lives at all. Of course, it also erases young people with disabilities — both those who cannot work, and those who want to work but who may be bumping up against this narrative of the “entitled” Generation Y denizen. Some of us have psychological issues or disabilities that put us completely at odds with the “overly-confident” and “entitled” stereotype that apparently befits the current generation — because we cannot stop worrying despite the fact that we are supposed to be totally optimistic and confident all of the time, thinking that the roads leading to our perfect job will be lined with rainbows and gold.

Some of us have physical disabilities, chronic pain, or chronic illnesses that prevent us from working 40-hour weeks (or more); asking for accommodations or disclosing our condition(s), we fear, may make us look “entitled,” or like we do not want to put in the time necessary to work our way up — even if this is not the case. The fact is that many people, and many young people, with disabilities are already at a tremendous disadvantage when it comes to the labor market and making a living. Not only are many people with disabilities more likely to live in poverty, but they may face hostility, discrimination, and unreasonable demands, both in the workplace and from society at large.

While I am not saying that these over-entitled Generation Y-ers don’t exist (they absolutely do, in my experience), I am struck by the fact that this narrative is so dependent upon erasing or ignoring certain people whose bodies and experiences do not fit the “expected” labor-related attitudes that have been traditionally upheld by American culture. Many of these attitudes, furthermore, rely heavily on binaries: You either work full-time, or you’re lazy. You’re willing to be mistreated in the workplace and do whatever it takes “for the job,” or you’re a wimp. Suck it up, or go home. If you’re not making enough money to live on or are poor, you just aren’t working hard enough. If you ask for “accommodations,” you’re asking for too much — just do your job! You have to work hard to “make it,” and if you don’t work hard enough, it’s your fault. If you don’t like your job or face daily mistreatment, you can always quit and find another one, right? But if you can’t, it’s your fault, and why did you quit that job, anyway?

The message for Generation Y, in general, may be “Get over yourself,” but the message for those who do not fit the characteristics of the “average” Generation Y worker is more severe — and ultimately more dire.

[Cross-posted at FWD]

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BADD 2010: “Exhibition”

For Blogging Against Disablism Day this year, I thought I’d share a poem that I wrote a while ago that I haven’t shared until now. I was going to turn it into a spoken-word piece but never got around to it. Better late than never, I suppose.

Exhibition

On my side
side/ways
eyes brain neck
spinning along with
everything else
and I haven’t even been drinking

this is not a workout
and yet, I am sweating
the body over (re)acts
does not know quite how to
respond
and I wish I
could say to
every non-believer, every “skeptic”

everyone who’s ever asked:
what’s wrong with you
why do you walk like that
is something the matter with your foot
what is it
why aren’t you getting better
why isn’t your attitude more positive
why can’t you

almost always accompanied
by one of these:
at least you can walk
at least you’re smart, so you can deal with this
at least you’re not homeless
or starving
or living in a Third World country
you’re luckier than most
how bad could your pain be?
just take some aspirin
stop complaining
why
why
why

for every
you should take vitamins
just work through your pain
I have pain, too
you’re too young to have something
like that
why are you so bitchy
that I hear
I smile a little bit, inside

because: someday
many of these people
will also know
pain

but for now
this is my reality
and I wish you could see it
feel it
for only a minute
and then maybe you’d
think before you
talk at me
or offer meaningless platitudes

every word that exits your mouth

random stranger,
friend of a friend,
asshole on the street who tells me to smile
because it can’t be that bad
every word
means less to me
than I do to you

I’m not your vehicle for
public service
I am not to be used
to show the world

what a great “liberal,” progressive kind person you are
or to be subjected to
your pity
masked as concern
so please step out of
my way
once I can stand, that is
for now—lucky for you
I am confined to vertigo
In my own carpeted purgatory

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Why SF’s Proposed Sit/Lie Laws Are a Terrible Idea

[Note: Please read the comments policy carefully before commenting.]

In San Francisco currently, there is something of a debate brewing about Mayor Newsom’s proposed sit/lie laws, which would make it illegal for anyone to sit or lie on any public curb or street in San Francisco (with a couple of exceptions).

The intersections with disability here are rather clear. For one thing, there are some intersections between homelessness and disability, because some homeless people are, for example, mentally ill or have disabling physical problems. Do either of these things make them unworthy of compassion, or not human? Of course not, but from the way this proposed ordinance is designed, it is, on a very basic level, criminalizing homelessness even more than it is already criminalized (not to mention socially stigmatized), while taking extra “common sense” steps to avoid citing non-homeless people for an offense. Observe the following response to concerns that SF police would begin to crack down on non-homeless people were the laws to go into effect:

During a heated, five-hour Board of Supervisors public safety committee hearing on the issue Monday, Adachi showed photographs of behavior that would be illegal under Newsom’s proposed law: a well-heeled tourist sitting on her luggage as she waits for a cab, a little boy sitting on a sidewalk clutching his skateboard, and tourists sitting on a curb and gazing up at the sights.

Assistant Police Chief Kevin Cashman said all of those people would be warned first to move and that none of them would probably receive a citation.

“Obviously common sense is going to be part of the training with enforcement of this statute,” he said at the hearing.

Ah, yes, “common sense.” Common sense, apparently, still makes the further stigmatization of homeless people de rigeur. Because apparently, they don’t deserve to sit down in public, unlike “well-heeled” tourists and neighborhood residents. I wonder what the response to a person with disabilities — tourist or not — needing to sit down on a public street might be? Someone waiting for an ambulance? While that is approaching a bit of a slippery slope argument (which I generally like to avoid), it is worth considering, simply because “common sense” will mean different things to different people — those whose job it is to enforce the statute included.

Also interesting is the framing of this ordinance in terms of concern for children. From one of the SF Gate articles:

Newsom, who bought a home in the Haight recently, was convinced to support an ordinance after walking along Haight Street with his infant daughter and seeing someone smoking crack and blocking the entrance of a business.

Certainly, children need to be protected from dangerous situations or potentially dangerous situations, but is an ordinance that criminalizes the poor and homeless — not all of whom are recreational drug users or addicts — really the way to do it?

Additionally, nowhere have I seen any plan to increase the number of homeless shelters or services for homeless people attached to this ordinance. The implicit message behind these proposed sit/lie laws seems clear: It’s too bad you’re homeless, but don’t you dare be homeless on our streets, because it might make our city look bad. Oh, and you certainly shouldn’t expect the city to help you not be homeless — even after it cites you for breaking the sit/lie law.

(Cross-posted at FWD/Feminists With Disabilities)

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Blast From the Past: This is Not My Type of Feminism

[Important note: New feature! “Blast From the Past” will feature past posts from my old blog that I think are worthy of inclusion on this one, mostly because I like ’em. This post is from May 2009, so it’s a bit old in blog-time, but I think most of the points made are still (sadly) relevant. I’ve changed some of the wording for clarification purposes.]

There are days when I question whether feminism, as a whole, is welcoming to people like me. Or to people who are not exactly like me, but are still part of groups that have historically been ignored, erased, marginalized, or plundered by mainstream feminism.

This absolute trainwreck of a “discussion”–on mental illness–happened over two weeks ago at Feministe, and I’m still thinking about it. Many (though not all) of the comments on that post are horrific displays of ableist tripe.

I do not understand why some find it so haaaaaard to grasp that disability and ableism are feminist issues, or that disability rights and the rights of people of all genders are connected; I find it equally difficult to understand why some are so dedicated to holding on to the last vestiges of their privilege, even as they give lip service to things like “inclusion” and “diversity.” Neither term holds meaning when used by a certain type “good” mainstream liberal/feminist/et al to describe just how awesome and progressive they themselves are; oftentimes, these words are used to make those in the mainstream feel better about themselves, their privilege(s), and their biases–some of which they just cannot let go.

Again and again, I see comments in several places online that suggest that disabled and other marginalized people, and their experiences, are only good for two things: enabling the “growth and development” of mainstream feminists, and providing abstract (at least to those who have that privilege) discussion fodder that allows various “concerned” fems to do their thing without questioning their own privilege. Both of these have the effect of depoliticizing any radical potential that those who are NOT het white cis upper-middle class able-bodied mentally “healthy” feminists may bring to the table. In a way, it’s kind of like using the ideas of radical women of colorwithout referencing where these ideas come from!–to make a point about your wedding, of all things.

It fucking hurts.

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