Headache #2

Inspired by — you guessed it — a bad headache that OTC pain relievers could not touch. Click for a higher-quality version.

[Description: Black and white line drawing of a dissatisfied-looking woman standing as a bunch of squiggles, random swirls, explosions, hands and sharp objects emerge from the top of her head. Some of the swirls emerging from her head wrap around her body.]

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Willpower isn’t enough

New-agers are always a-titter about individual willpower as the response to everything. Often, this does not work for those of us with health issues, no matter how hard we may try (as demonstrated in the cartoon above)! Click for large.

[Description: Line drawing of a woman, obviously in pain, with a thought bubble over her head that reads “Willpower. Willpower. WILLPOWER.” On her left, a very happy-looking giant pill leaps from a bottle of prescription pills while saying, “Just TAKE ME already, asshole!” to the woman.]

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Quick post: Experimenting with ink

I’ve been trying to do some stand-alone line drawings recently, with mixed results. Here is one that I completed a few days ago that I quite like (as always, click for larger):

[Description: Photo of an ink on paper drawing with lots of random, grey ink splotches and splatters. On the right side, a figure (*~ARTISTIC~* black and white line drawing version of Annaham, the artist) stands in a large blob of grey, with a somewhat blank expression on her face. Her hands and arms are depicted as sharp, jagged claws.]

I will probably upload more of these when I can get access to a scanner, instead of having to settle for crappy laptop camera pics.

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Songs: Nick Cave and the Bad Seeds, “And No More Shall We Part” (2001)

Nick Cave and the Bad Seeds, “And No More Shall We Part” (lyrics). I believe the above performance is from a French television show.

I am starting a new Tumblr/blog series for 2011! It is about songs that have somehow impacted my life, and why. I was going to write about entire albums, and then I realized that that would become a huge undertaking that I would end up never finishing. So: an intermittent series on songs, because many songs are bite-sized, aurally speaking, and manageable enough for me to write about and not feel like I’m giving other things (other tracks on an album, for example) short shrift.

I’ve been trying to write about this song, and what it means to me, for the past couple of days and have been mostly coming up blank. No More Shall We Part was the first Nick Cave & TBS album I bought, around early 2006 or so, after an internet friend, Sarah, had included “Do You Love Me (Part 1)” (which, strangely, is not on that album!) on a mix some years before, and I kept pressing the back button each time the track would end. I can’t remember the reason why I bought this album first; it may have been the first result on Amazon when I typed in “nick cave and the bad seeds,” or it may have had the highest rating on iTunes or something.

The “real” reason, though, is not important. Nick Cave’s music–despite the weird, sometimes off-putting reliance on the women-as-goddesses-or-evil-temptresses trope of some of his work (or, in the case of most of 1995’s Murder Ballads, as victims of homicide by men)–has meant a lot to me, and continues to. No More Shall We Part is my favorite album of his and the Bad Seeds.

I first heard this album–and this song, which was the one that really grabbed me–during a particularly difficult time in my life. Out of nowhere, I had started experiencing moderate to severe chronic pain and fatigue to go with it, and I had no idea what to do. None of the doctors I saw could figure out what was wrong with me. When I was tired or in too much pain to do very much (which was often), I would rest and listen to music. “And No More Shall We Part” was one of the songs that I listened to constantly; almost without fail, whenever I played it, I’d listen to it at least three or four times because it was just that affecting.

I don’t believe in God. Nick Cave, however, does, and is not shy about expressing this in his lyrics. “And No More Shall We Part” contains many references to God; though this specific aspect of the song did not grab me, something about the way he sings it absolutely did.

Lord, stay by me
Don’t go down
I’ll never be free
If I’m not free now

Lord, stay by me
Don’t go down
I never was free
What are you talking about?

I didn’t believe in God, then. I needed something, however, to get me through the worst of the pain, to remind me that I was going to be okay even if the doctors–if most people around me, to an extent–couldn’t see what was going on in my body. It’s hard to put into words, but Cave’s voice was that hand reaching through my headphones, assuring me that I would be okay, even if I felt alone and scared and hopeless and bad for having health problems–and, ultimately, even if I couldn’t see any answers on the immediate horizon.

[Originally posted on my Tumblr]

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MST3K: Posture Pals

Holiday-themed MST3K shorts are rather scarce, so you get this instead.

Happy Holidays, everyone!

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5 Ridiculous Big Pharma Ads

I have an ongoing peeve that relates to medication and social attitudes surrounding it: often, for some people on various sides of the political spectrum, trashing Big Pharma translates into trashing people who use prescription medications at all, for a variety of health conditions — especially for chronic conditions, both of the mental health and physical varieties. As a woman with multiple disabilities — a few of which require me to be on medications manufactured by Big Pharma (OOOOOH, SCARY) — I am not, how shall I put it, too excited about this. It’s really nice that stereotypical Extremely Naive Hippie Liberals and Rugged, Anti-Government Bootstrapping Conservatives can, theoretically, bond over how much they mutually hate those of us who take medications for legitimate medical reasons — but even those of us who, normally, would like and/or encourage all of this talk about “building alliances across the [political] aisle” have limits.

In short, there are a lot of things for which you can take Big Pharma to task without also treating the people who depend on these medications like total shit. One of these things is advertising and direct-to-consumer marketing, at which Big Pharma seems to be really quite good! And by “good,” I mean totally ridiculous. Let’s take a look at five different ad campaigns that should never have left a pitch meeting, much less been made with gargantuan budgets, professional actors, and voice-overs that calmly inform the viewer/listener of possible side effects.

5. Cialis: Yes, the one with the make-out music in the background and the couple sitting side-by-side in the bathtubs out in a meadow or something. Why is it so difficult for these folks to find a tub big enough to fit them both?

4. Uloric: Granted, this one may not be as ridiculous as some of the others on this list, but the visual of a dude carrying around a giant beaker of green liquid (which looks suspiciously like it should be in some sort of fancy alcoholic drink that costs upwards of $7) is pretty bizarre, as is the voice-over that helpfully informs viewers that side-effects may include flare-ups of the very condition that Uloric is used to treat. This might be the entire point of the ad, though; since Uloric is a medication intended to help with Gout symptoms, wouldn’t it be more accurate to have the guy wear shoes to which giant beakers are attached? Perhaps we could see a live-action depiction of the 16th-century drawing included in the Wikipedia article on Gout, instead of a guy with a big beaker of neon-green energy drink? That would be awesome, and might get the Gout-is-horribly-painful-and-this-medication-could-help message across in a way that actually makes sense.

3. Lyrica: Every time I see this one, I want to yell at the TV, particularly when the one featuring the classy middle-aged lady who bakes bread has somehow made its hellish way into my precious rerun of Dirty Jobs or another show that I don’t like to admit to enjoying. The actress in this ad pronounces “Fibromyalgia” like it’s a seasonal root vegetable or something (like “FYE-bro-MY-al-GEE-AH”) and all I can do is give the television my most hateful death glare. Oh, and even better is when she says that “My doctor diagnosed it as FYE-bro-MY-al-GEE-AH muscle pain,” and I want to scream, “Lady, IF YOU KNEW what fibro was actually like, you would not be saying that. You would probably be in too much pain on some days to do very much.” Or baking loaves of crusty bread en masse, for that matter. As someone who’s dealt with fibro for the past few years of my life, I only wish I had enough energy to bake many loaves of bread, like the woman in this commercial. Sweet, delicious carbs might help my pain, or at least give me something to focus on other than constant pain and fatigue.

2. Cymbalta: My personal favorite moment is when a kid runs up to hug the woman (presumably a relative?) and the camera focuses on her face, and she just looks so sad that the explanation just has to be terrible acting (or depression, according to the good folks at Eli Lilly). Depression’s symptoms are much, much more complex than walking around looking like the emoticon for sadface [😦], but you wouldn’t know it by watching this commercial. I think someone should make a parody of ads like this, except that some other person approaches the woman, tells her to “Snap out of it,” and then the woman gives that person the finger–or, more accurately, gives them the 😐 face, because that is what certain aspects of depression make you feel like doing. You’re not only sad all of the time, but often you feel too hopeless to respond to people’s asshattery when they feel the need to comment on your depression and/or tell you that you Just Need To Buck Up.

1. Viagra (“Viva Viagra” spot): Truly the stuff of nightmares. The first time I saw this ad, I was awake at 3 or 4 AM due to pain (go figure, right?) and thought I was hallucinating when the opening chords of “Viva Las Vegas” started up in the opening seconds of this ad. I was, at first, confused as to what that particular song had to do with a medication used to treat erectile dysfunction. And then four middle-aged dudes–one playing a guitar–appeared on the screen and started to sing “VIVA VIAGRA!” to the tune of a song that most people associate with Elvis Presley, or any buddy comedy that has some sort of drunken Vegas montage. If you’re sure that this one won’t give you nightmares, I urge you to find it on YouTube, because it must be seen to be believed. Unfortunately, it’s been replaced in recent months with 30 seconds of yet another middle-aged white dude driving a car around in the dark. The penis = car association makes more sense than hanging out with your best buds and singing about Viagra, I suppose, particularly if you know anything about psychoanalysis.

Readers, what are your least favorite Big Pharma ads, and why? Short descriptions (and links to videos, if you have them) can be helpful for people who may have not seen the ads; please include them, if possible, so that we may all share in the unintentional hilarity.

[Originally posted at FWD]

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Writing: Not that easy

There seems to be a pretty popular misconception — not just limited to the internet, by the way — that writing is somehow “easy” to do.

Good ideas, and good writing, do not just spring fully-formed like Athena from the mind of Zeus. Like many things worth doing, writing is a process. I used to be a writing tutor for undergrad students, and one of the things that countless students expressed to me was their shock that writing was hard work, and that most of the time, one could not “just” write a paper in a single sitting and expect to get a perfect grade.

I cannot tell you how many times I have written half-drafts of papers, or opinion pieces, or short essays, or blog posts, and either ended up doing away with them altogether or substantially changing them multiple times. Most of the writing of which I am most proud — not all of which I have posted online — has taken quite a bit of time, research, and energy to put together. I write things down in a notebook most of the time as part of my working-through-ideas “process” (if you want to call it that), but often these scribblings do not at all resemble the final product. Hell, I have bits sitting in my blog queue that are in constant need of expansion or revision; though I tend to complete pieces once I start them, there are times when I just cannot find a good ending for certain pieces, and they end up sitting around unused for weeks or months.

On occasion, I don’t use posts or pieces at all, or post them. There are some pieces of writing that are beneficial for the writer, but I may have reservations about exposing them to an audience. Or I may have trouble saying what I actually want to say in plain and easily-understandable language — in the past, this has ended up saving me from posting some real crap and some not-even-half-baked ideas.

The fact that writing can be very difficult is not a personal failing. A large percentage of my former students seemed to think it was — that if their ideas did not emerge brilliantly and painlessly the first time, then these ideas were not worth expressing at all. Utilizing the written word is a skill, not an innate talent. There is no formula for a “great” piece of writing, or post, or essay. If someone finds hirself sitting and trying, straining to write, grumbling, “Why is this so hard?” — well, that can be the nature of the process. It can be fickle, and it is almost never “easy” in the traditional sense.

[Originally posted on my Tumblr.]

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Things That Make My Life Easier: Black Phoenix Alchemy Lab

[Image description: Four bottles of perfume in front of and resting upon some books; the bottles are labeled “Australian Copperhead,” “Banded Sea Snake,” “Cottonmouth,” and “Asp Viper,” respectively. Image courtesy of Black Phoenix Alchemy Lab.]

Today, I am taking a page from amandaw’s awesome series “Things That Make My Life Easier” and have chosen to spotlight the fantastically scented goodness of Black Phoenix Alchemy Lab. As a person with chronic pain, I have found that certain things having to do with the five senses that take my mind off of my pain — even for a few minutes — makes dealing with pain and fatigue much, much easier. While I am unsure of the scientific veracity of perfume oils and their use in general life-improvement for folks with pain issues (in my case, fibromyalgia, which for me usually causes intense muscle pain and moderate to severe fatigue), I have personally benefited from wearing the complex and often surprising essential oil blends in which the Lab specializes. While smelling nice certainly won’t bring my physical pain down from, say, an 8 to a 1 (on a scale of 1 to 10), many of these blends have helped me to relax, focus on a different sort of physical sensation that is not abjectly, horrendously painful, and generally be more comfortable as I go about my day.

Besides a ā€œGeneral Catalogueā€ consisting of hundreds of scents—all inspired by a diverse mix of people (comic-book heroes and heroines; H.P. Lovecraft), places (the ā€œWanderlustā€ line, which offers scents inspired by famous locales) and things (love [image on page is NSFW], myth and fairy tales, classic art, religion and spirituality, and Alice in Wonderland, to name just a few)—BPAL also offers Limited Edition blends. Currently, they are offering their annual Fall/Halloween scents; if you’ve ever wanted to smell like an apple orchard, fall leaves and smoke, or Halloween candy, one (or more) of these oils may be for you.

It is next-to-impossible for me to pick favorite blends, as mine seem to change by the day. There are a few that I consistently utilize, however: Blood Kiss is a bizarrely dark blend of vanilla, clove and cherry that I’ve been wearing for years (I’m on my third bottle of the stuff). Absinthe is effervescent, minty and (obviously) boozy. When I want to smell sort of like a head shop sans the moldy undertone, a couple drops of Sin do the trick. Aquatic scents seem to be my most-used “category,” with the salty, swampy Bayou being the one that I reach for most often, tied with the Limited Edition Sturgeon Moon (the latter is no longer available, unfortunately). The smoky, slightly citrusy goodness of Carnaval Diabolique (part of a sprawling LE series of the same name) makes for a great late summer/early fall scent, as does the sharp, lavender-tinged Casanova.

Of course, the very fact that I wear essential oil perfumes brings up another issue — how to be sensitive and accommodating to fellow PWDs who may have scent sensitivities, allergies, or who may have otherwise painful reactions to scented stimuli. When I’m planning to be out and about, I tend to wear a drop or two at most, usually applied with a q-tip, and allow ample time for the oil to dry before I leave the house; this is not a perfect solution, but I am still figuring out how to balance the benefits that I personally get from wearing these amazingly-crafted oils with the needs of other PWDs whom I may encounter in public.

[Originally posted at FWD.]

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Reactions, part 1

[Warning for somewhat graphic discussion of medical procedures and adverse allergic reactions.]

I have been dealing with weird, severe, and inexplicable allergic reactions since the age of 14.

Most of these reactions have been to food items; my known food allergies include peanuts, various tree nuts, and (wait for it) green bell peppers. Of course, I take great caution to avoid these foods and my exposure to them. Unfortunately, with my immune system, such caution is no guarantee that I won’t have an “attack” out of the blue.

The first “attack” I had, in fact, was one of those not caused by food. I was a teenager at the time, in Paris on vacation with my family. I don’t remember much about my initial symptoms other than I felt overly-warm very suddenly, and decided that it would be a good idea to take a cold bath in order to rectify the situation. My mom found me in the bathroom of our rented apartment, facedown on the tile floor and missing several items of clothing. I had figured, somehow, that putting my face on the tile floor as a method of cooling down would look less weird than sticking my entire head into the freezer. My face, which had initially turned bright red, swelled up so much that I soon found myself unable to see. I had quickly begun to resemble the Bob’s Big Boy logo; I should note here that if you ever start to resemble a famous food-related logo, you should probably go to the nearest hospital post-haste.

My Bob’s Big Boy transformation was quickly followed by giant, blotchy pink hives that appeared on my neck and shoulders. Joining the party somewhat late was a hot, almost volcanic feeling in my lungs that quickly morphed into breathing trouble. Severe breathing trouble. So my family (my mom, my dad, and my younger brother — who suggested that I not look at myself in any reflective surface so as not to become more freaked out) and I took to the streets of Paris in search of a hospital. We found one — after a quick visit to what we thought was a hospital but which actually turned out to be a convalescent home. At the ER, the staff took one look at me and immediately put me at the front of the queue; I was quickly whisked away to a magical land where a nurse tried to calm me down, completely in French, when I loudly protested the insertion of a large IV needle into the underside of my forearm. The only English-speaking doctor on staff, as it turned out, was on his day off, but came in to examine me and assure my family that I was going to be okay.

When we came back from vacation, I had another attack about a month later. And then another. And a few more, until one ER doctor suggested that I get a full round of allergy tests, more commonly known as “scratch tests.”Ā  The scratch tests revealed a substantial peanut and tree nut allergy. I took care to avoid these foods, or any foods that may have come into contact with them. Unfortunately, I still kept having attacks, even when I avoided the dreaded peanuts and tree nuts. I still have them, approximately once every 3-4 months.

Sometimes, I get them as a result of cross-contamination if I eat at a restaurant. Sometimes, I get them for no reason at all — even if I haven’t eaten for a while. The symptoms tend to be fairly consistent: first, a scratchy feeling will start in my throat and lungs, followed by wheezing. Then comes breathing trouble, which tends to feel like an elephant is standing on my chest. Usually, my eyes will then swell up to the point that I cannot open them all the way, or see. Sometimes, I get gastrointestinal trouble as well, the symptoms and signs of which are not things that I can discuss in polite company due to general grossness and/or TMI.

The first five to ten minutes of these attacks are, generally speaking, the worst part(s). By now, my battle plan for dealing with these attacks is well-established: Take a shot or two of my inhaler at the first signs of trouble (usually breathing difficulties plus another symptom), then four or five antihistamine pills. Of course, it takes a few minutes for these things to kick in, which is part of why the “waiting” part is so physically painful. During these first few minutes, I am in some sort of hellish allergy-limbo: it feels like someone or something has put some bricks on my chest and torso, I can’t see or can barely see, and it feels like my intestines are being vacuumed out of me — and the only thing I can do is wait for the medication to start working. I generally consider myself to be a patient person, but nothing will sap your patience like having to wait out a potentially life-threatening medical emergency.

And if that doesn’t work, I have to go to the next level, which is using epipenephrine, a self-contained steroid shot to be injected into the thigh in case my breathing is so severely compromised that I pass out or am in danger of not getting enough air into my lungs.

For these sorts of attacks, there is really no pat, inspirational or life-affirming end, so much as a screeching halt after the medication actually starts working. And this total lack of inspiration or an end in sight is also reflected in some of the responses I have gotten from many abled people in regards to my “allergy issues” (to be addressed in part two).

[Cross-posted at FWD.]

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Dancing robot

I am in the middle of doing many things (including moving), which means I haven’t had much time to update! Here is a robot, developed by H. Kozima and M. Michalow, dancing to some music.

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